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Brave schoolgirl with “one in a million” condition is one of just 500 cases in 70 years

Video Credit: PA - Press Association STUDIO - Duration: 01:55s - Published
Brave schoolgirl with “one in a million” condition is one of just 500 cases in 70 years

Brave schoolgirl with “one in a million” condition is one of just 500 cases in 70 years

Lian and Matt Kent, who fear their daughter might not live to see Christmas, have spoken out about her "one in a millino" condition, Alexander disease.

The condition is a progressive and incurable condition that can cause enlarged brain and head size, seizures, stiffness, and developmental delay.


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